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Growing up in the Iranian Jewish community, I was never exposed to information pertaining to genetic diseases associated with my heritage.  Now, as a young adult who has studied about the prevalence of certain diseases that affect our community, I believe it is time to address our lack of engagement with these issues.  I believe it is our right to know about our genetic risk factors, especially for those in childbearing years (like myself, according to my maman).

Genetic disease prevention is empowering, or at least should be, and the reluctance of members in the Iranian Jewish community to obtain genetic testing/screening is perplexing.  To this day, we have not been handed the necessary tools to make informed decisions about genetic disease prevention.  Perhaps this can be attributed to the disconnect between scientific research and the greater community; as more genetic mutations are found, the gap between these two groups widens.  It is my hope to bridge this gap.  I want to explore the reasons why Iranian Jews would or would not obtain genetic carrier screening.

I urge you to help me uncover the factors that may persuade or dissuade us from getting screened.   Attached is a flyer that will direct you to a brief anonymous online survey. The information collected from this survey will be used to examine the factors affecting genetic screening behavior.  This research will initiate the groundwork for further prevention efforts to eradicate the genetic disorders to which we are most susceptible. The survey will take 10 minutes to complete and you could win a $100 gift card by participating.  Join me in contributing to the health and longevity of our community.

Let us take ownership of our future together.  Let’s change the status quo.gen

CLICK HERE TO PARTICIPATE: http://goo.gl/4e8VgZ


 

Caroline Sahar Hebron

Master of Public Health (c) – CSUN

Biology & Mathematics, BSc – UVIC

Email: caroline.hebron.246@my.csun.edu

Phone: 818-400-2219

 

 

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Born in Montreal and raised in Vancouver Canada, Caroline is a true Canuck transplant in Los Angeles. Throughout her life, Caroline has dedicated herself to social justice movements and health initiatives. She holds a BS in Biology and will be graduating with honors from her Master's degree in Public Health in June 2015. She is passionate about making change in the world, be it through founding an HIV/AIDS fundraising campaign on campus, working for pennies a day for an inspirational summer camp, or by increasing awareness of genetic disease prevention within the Iranian Jewish population. She hopes to continue to contribute to this field as it is so crucial to the health of her community.

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IsraAID is launching the Humanitarian Professionals Network (IHPN) in Los Angeles and Bay Area

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 World-renowned Israeli Humanitarian and disaster relief organization expands presence in U.S. by offering Americans training andopportunities for Disaster relief deployment

Los Angeles, CA – On January 10, 2019, in Los Angeles, disaster relief NGO IsraAID will launch its new aid initiative, The IsraAID Humanitarian Professionals Network (IHPN), an elite program that trains doctors, dentists, nurses, engineers and mental health professionals in disaster response and deploys them around the world to helpsave lives.

IHPN members become part of a network of likeminded professionals at the top of theirfields, joining a robust roster of professionals in Israel, and have a chanceto share Israel’s humanitarian ethos with communities in need. Current IsraAID missions span disasters such as the wildfires in California, refugee crises in Greece, Kenya, Bangladesh, violence in Uganda, and cyclones in Vanuatu.

“IsraAID draws on Israeli social innovation and expertise to benefit people in need around the world. We are now leveraging our organization’s unique capabilities to train professionals in the U.S. interested in developing life-saving skills and joining humanitarian relief missions globally, hand in hand with professionals from Israel” said Seth H. Davis, Executive Director of IsraAID U.S. “IHPN will equip skilled individuals in hands-on disaster relief experience and provide enhanced capacity if local disaster were too strike.”

The first event, entitled “What You Need to Know About Humanitarian Aid,” will feature speaker Tim Burke, MA, MPH, who lead IsraAID’s work in South Sudan for five years, where he oversaw programs in public health and post-conflict development. Subsequent speakers include atmospheric physicist Colin Price and refugee crises expert Dr. Nir Boms.

With deployment in 49 countries, and currently active in 19 countries, IsraAID is an expert in training professionals to deploy. In the U.S. alone in the last year, IsraAID has provided humanitarian relief in Florida, Texas, North Carolina, California, and Puerto Rico.

“IsraAID will make Los Angeles more secure by leveraging their unique expertise in disaster response to train professionals in our community,” said [Paul Koretz]. “I look forward to working with IsraAID to help them rollout their IHPN program in California”

Professionals interested in attending should RSVP here  and/or learn more and join the network here.

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About IHPN: The IsraAID HumanitarianProfessionals Network (IHPN) is an exclusive network of professionals at thevanguard of global aid relief activities. Members of IHPN receive expert briefings, emergency-preparedness training, access to enrichment with field leaders,and priority access to deploy on IsraAID missions.

About IsraAID: IsraAID is anon-governmental organization that provides lifesaving emergency relief andlong-term, sustainable solutions for populations affected by natural disasters, epidemics and post-conflict situations. Our teams leverage Israeli innovation,work in full collaboration with local partners, and educate the public and professionals on disaster prevention and relief. IsraAID (US) Global Humanitarian Assistance, Inc. is an independent 501c(3)organization.

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Nothing Matters More Than This

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We live in a world where FOCUS is even MORE important than your INTELLIGENCE.

From our never-ending Facebook feed, to our freshly-updated YouTube subscription page, to our email inbox, we live in an abundant world of information.

However, is it really necessary to consume all of this general information?

Will it ever be useful? Will it ever make any difference in your life?

No. Most likely not.

Learning a little about a lot of different things doesn’t really amount to much.

Instead, you should FOCUS.

Focus on learning and applying ONE skill as intensely and deeply as possible.

Focus is where mastery kicks in.

Kobe Bryant wasn’t the best basketball player that ever played because he was the best all-around person.

Kobe Bryant was world-class because he was absolutely great at ONE thing and one thing only: playing basketball.

So instead of consuming as much general information as you possibly can… instead FOCUS.

FOCUS on one topic. FOCUS on one task. FOCUS on one goal.

Because today, more than ever, focus is way more important than your intelligence.

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New Initiative Launched to Restore Memories and a Legacy

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On Tuesday January 30th, Thirty Years After (30 YA) hosted the Legacy Launch, one of their largest, most innovative and interactive projects to date, at the Ahyra Fine Arts Theater in Beverly Hills.

Sam Yebri, President of Thirty Years After, explains the Legacy Project, “The Project is a grassroots initiative that will help preserve and honor the Iranian  Jewish experience through video for future generations,  and provide an opportunity for every family to capture their parents’  and grandparents’ most compelling memories and anecdotes before it is  too late.”

Doors opened to guest at 7:00 pm where they were greeted with smiles from 30 YA volunteers and staff members. The lobby was packed with guests who were treated to wonderful Iranian street food not often seen or eaten in the United States. The delicious cuisine included Labu (beets baked in their own juice, and typically served steaming hot in a street cart during the dead of winter), Baghali (beans topped with spices, typically served the same way as Labu), Dizi (a meat mash/stew– usually made with lamb, but made with beef and chickpeas at our event), Shohleh Zard (saffron rice pudding), Chos-e-fil (otherwise known as popcorn) and Mahi-Cheh Polo (herbed rice with beef shanks).

The large number of attendees was a testament to the genuine and unprecedented support for the new generation of leaders of the Los Angeles Iranian-American Jewish community.  The printed program for the event listed over 25 generous families and businesses that supported the Legacy Launch and congratulated 30 YA on celebrating their 10 year anniversary.

This event was magical because of the broad range of emotions experienced just by being shoulder to shoulder with grandparents, aunts, uncles and cousins born in Tehran. Sadness is one emotion that could have been felt while standing in the room, because of all of the untold stories that were not recorded, told or heard. How many stories have we “missed out” on because family members have passed away, younger generations have gone off to college, or simply because we took time for granted? At the Legacy Launch, time stood still for a few hours for the sake of a community recording the past, but very aware of time, embracing beloved memories on video, but also progressively moving toward the future.

Yebri explained, “Our history informs our present and powers our future. This is especially true when our families and community have such a rich legacy of inspiring memories and experiences in Iran and during our exodus to America.  30 Years After  is thrilled to launch ‘The Legacy Project’ as part of the organization’s 10th anniversary celebration.”

Bobby Zolekhian, former President of Nessah Young Professionals expressed, “It was one of the most inspirational events I have been to. I am recruiting people to share their stories. This is something extraordinary!”

Featured guest speakers during the screening included Mrs. Susan Azizzadeh, President of the Iranian American Jewish Federation, Dr. Saba Soomekh, Assistant Director of Interreligious and Intercommunity Affairs at AJC, Megan Nemandoust, Margalit Rosenthal, Liora Simozar and 30 YA President, Sam Yebri.

The dynamic presentation of the screening and its intimate interviews clearly validated that the second and third generations of Iranian Jews growing up in the United States are confidently embracing their unspoken responsibility to record the stories of generations before them for a purpose with a greater cause– maintaining their identity, culture, and traditions.

Learn more about preserving your legacy with 30 YA at https://legacy.30yearsafter.org/

 

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december, 2019

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